2025
Identifying the Financial Toxicity Experiences of Childhood Cancer Survivors Through Partnership With a Community Organization Serving Rural and Minoritized Families
Benedict C, Bloomer K, Billman E, Smith M, Boynton H, Schapira L, Smith S. Identifying the Financial Toxicity Experiences of Childhood Cancer Survivors Through Partnership With a Community Organization Serving Rural and Minoritized Families. Psycho-Oncology 2025, 34: e70120. PMID: 40097346, DOI: 10.1002/pon.70120.Peer-Reviewed Original ResearchConceptsAYA survivors of childhood cancerSurvivors of childhood cancerChildhood cancerAYA survivorsFinancial toxicityAdolescent/young adultPerspectives of staff membersNon-English language preferenceStaff membersCancer support organizationsThematic analysis approachCommunity-based organizationsRural regionsParental employmentIndirect medical costsNeeds assessment studySemi-structured interviewsMedical visitsVulnerable populationsLanguage preferenceInsurance coverageMedical costsQualitative dataRural areasMinoritized families
2023
A qualitative study of childhood cancer families’ post‐treatment needs and the impact of a community‐based organization in a rural, socioeconomically disadvantaged, majority Hispanic/Latino region
Smith S, Teer A, Ariceaga E, Billman E, Benedict C, Goyal A, Pang E, Pecos‐Duarte C, Lewinsohn R, Smith M, Boynton H, Montes S, Rivera E, Ramirez D, Schapira L. A qualitative study of childhood cancer families’ post‐treatment needs and the impact of a community‐based organization in a rural, socioeconomically disadvantaged, majority Hispanic/Latino region. Pediatric Blood & Cancer 2023, 71: e30798. PMID: 38053230, DOI: 10.1002/pbc.30798.Peer-Reviewed Original ResearchConceptsPost-treatment needsNon-English language preferenceChildhood cancer survivorsChildhood cancerCancer survivorsCBO staffYoung adult childhood cancer survivorsCommunity-based organizationsAdult childhood cancer survivorsHealth disparitiesMedian age 20Year post diagnosisHispanic/Latino residentsLow socioeconomic statusCommunity-based supportFamilies of childrenPost diagnosisAge 48Age 20Language preferenceCancerMental healthChild's diagnosisSocioeconomic disadvantageSocioeconomic status
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